Monday, March 3, 2014

To Infinity and Beyond...

In September, our school sent out this "Save The Date"...



I taped it to the back door along with Zach's fifth grade musical save the date.  I knew it was either going to be a very happy day on March 4 or a sad one. We thought Braden had only a few months left to live in September and March was a REALLY long time from then.

March 4 was going to be a day that Braden would be here to see...

or not.

I almost didn't put it up because I didn't want to risk that he would be an angel and I would have this stupid sign to take down as yet another reminder he was not here.

And while we are heading to transplant soon, tomorrow is his musical and he is going to be there.

TAKE THAT cANCER!!!

He gets to dress up as his favorite character from a movie...

and he chose Buzz Lightyear.

Ordinarily, I would have said no because I didn't want to buy a costume, but this musical is special, so I ordered a Buzz costume.



I think he looks pretty cute. :)

And he is really good at shouting, "TO INFINITY AND BEYOND!"

No, that's not part of the musical ;) but he's pretty darn cute when he wears it.



We also got his hair cut today and that was a tough moment because it will likely be his last haircut while he is 9 years old.

Once in transplant, he will lose his hair and then it will have to grow back.









IF we are super lucky, he might grow those beautiful curls back that he's gotten each time it's grown back from chemo. I LOVE the curls...

Even if Brian says it makes him look like a girl. :)

They are so sweet...





He even wore his Hulk costume for his haircut and showed the lady his "muscles" and gave her his best "Hulk SMASH!" impression. It was pretty precious!



Zach was very insistent that Braden should not wear his costume to the salon because it would be "embarassing" (he's going to middle school next year so he's preparing for that life change and more things are now "embarrassing".

Sigh...

But even Zach had to admit he was cute! :)

Tomorrow morning, my sweet baby boy walks out the door and goes to school for his musical performance and THAT is a victory.

cANCER gets too much time and too many memories from people who have it.

But, that's sort of the point...Braden has cANCER, cANCER doesn't have HIM...

and tomorrow we get another "W" in our column.

This 9 year old is kicking cancer's ass even though it keeps picking new battles.

And Braden is going to keep winning...

TO INFINITY AND BEYOND...

TAKE THAT cANCER!



2 comments:

  1. Deliece,
    I am DELIGHTED about tomorrow and Braden's Musical... :o) WOOT ! WOOT!! Another VICTORY!! <3

    It brings to mind the song from ANNIE:
    "Tomorrow, tomorrow, I love ya, tomorrow, You're only a day away!"

    MY how many WONDERFUL tomorrows with Braden you and your family have been BLESSED WITH!!
    May he grow older and older and you enjoy so many tomorrows that He becomes a TEEN and argues with you!
    I imagine you will be smiling through EACH one, because those arguments mean VICTORIES!!!
    May he grow old and grey and kid you and Brian about being "old!!" That would be a HUGE Victory! (BOO! YAAH!!)

    I am so proud of you, your determination, your FIGHTING, your stubbornness, your stamina, and ESPECIALLY your ability to SHARE it all with us, your ARMY.
    You have STRENGTHENED so many people's FAITH by sharing your faith with each of us.

    Thank you for sharing. Thank you for the FIGHTS you have allowed us to witness and to root for YOU & your FAMILY! Thank you for not giving in nor giving up.

    You mentioned how words made you feel. . .

    I would like to add another quote that I heard many years ago when our son was so ill:
    "When God closes one door, He opens another.... but sometimes its hell in the HALLWAY!!" LOL
    That one helped me on days when it seemed as if our son could endure no more. . .

    May God continue to HOLD you & all of your FAMILY on this walk that is ahead of you:
    May He CARRY the load and may His vision for you and your family be made crystal clear so that you have a good feeling about any decision you make. May you find the STRENGTH you need from all of US in Braden's ARMY so you know you have MANY people in your "court' and may you feel a CHOIR of ANGELS gathering around BRADEN and your family giving you strength, love and a MIRACLE.
    Amen! <3

    Grace & Blessings to the Hofen FAMILY! <3 <3 <3 <3
    Cheryl & Kiddos

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    1. Thank you SO much Cheryl! That was beautiful!! :)

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