Sunday, June 30, 2013

and then....

It just doesn't seem to end.

We got the results from Braden's bone marrow and got the PERFECT answer..no disease.  WOO HOO!!

What a HUGE relief...or so I thought.

SO...I emailed our team in Philly and they told me that they were doing further testing to see if Braden had a form of pre-leukemia and that would take 2 weeks of wait time for the results to come in.

UGHHHHH!!!!

And damn....I thought we were in the clear.

So we wait, but...there's more...

Seriously.

We go to Philly for scans on July 16-17...scared out of my wits but hopeful. It's entirely possible it could be in his body but not in his marrow so there's another scare.

We know that Braden can't continue the treatment he is on right now because it's either a toxicity or it's not working any longer....awesome.

He's been on that drug for almost 2 years and was supposed to have it for a little over one more year. The irony is that we fought to keep it and now we lost it during the same time frame they were scheduled to take it from us.

I keep thinking that we must have fought for it so that another child (because all the kids taking that drug get to keep it now because of our fight) needed it and it will help him/her.  It had to be for some reason because it was quite a battle with Abbott Labs.

SO....the question is this. IF scans come back clear, he could qualify for a different drug that is being given to children that have neuroblastoma and are in remission.

BUT...his blood counts have to come up within 120 days and if it's longer than a few more weeks, we would have to repeat the bone marrow aspiration for him to qualify AND I haven't had a chance to fully review the data yet....

Well..I've had a chance. I just haven't.

I've been pouting and sulking and worrying....

and detouring!!

There's no rush because he can't qualify right now anyway until those platelets come back up so I'm choosing the later list of things to do. I ROCK at at them ALL!  But...I'm especially good at pouting...

There's a reason.

This new treatment could be done in KC which is nice BUT it means our Philly team won't be in charge of our treatment plan.

I really didn't realize how big of a deal that was to me, but it's HUGE!

Dr. Mosse has been our saving grace and that team has my complete trust...100%.  Okay...97.999%...I'm always skeptical of everything so I need a little room for that. ;)

On the flip side...I give Dr. Neville in KC the same amount of trust...she ROCKS and I absolutely adore her AND believe in her work.

I am literally mourning the potential loss of Dr. Mosse and team as our Principal team.

And at the same time, I'm thrilled to think Dr. Neville could be doing that role...she really is amazing.

So to transition my heart and mind, I'm pouting, sulking, worrying and most importantly...detouring. I need a break. I've been working 24/7 for a whole lot of months and the boys are off school and deserve to have a mommy who plays with them so I'm taking a break..a much needed break....but that break is for multiple reasons, not just about playing, it's also about sulking and pouting and worrying! :)

It's soooo complicated! LOL!!

In the meantime keep those prayers and hope coming in the event that he can qualify for this new treatment so we can really consider it. I just can't wrap my head and heart around hoping for it until it's even a possibility with clear testing results for the pre-leukemia, and clear scans, and....information about this drug that makes us think it's reasonable and helpful.

It's a roller coaster...this entire nearly 6 years of crapfest has been a roller coaster BUT...

we are blessed to get to ride...

The alternative is he is an angel and we don't get to even try.

We are VERY fortunate and that thought never escapes my head and heart.

And it also never escapes my head and heart that this is a REALLY messed up think to have to be grateful for...

cANCER...you suck.

And we will keep fighting you with everything we have...forever.



Keep hoping!!

TAKE THAT cANCER!








Sunday, June 23, 2013

answers...

I don't have any answers yet.

We are still waiting for answers/results from Braden's bone marrow aspirates and biopsies.

And we will likely get those answers either tomorrow or Tuesday. I really suck at patience.

REALLY suck at patience...

And I have a sick stomach, worry in my heart, and a lump in my throat.

A third relapse would be devastating. Absolutely 100% devastating. And I know that there is not a thing I can do to change what the answers are going to be.

I have turned to the two things that I CAN control in an uncontrolled situation.

Dirt

and Detours.

I clean like a crazy person. I am in total control of dust and freshly lined vacuum marks in the carpet. And I am ROCKING that OUT!! :)

And we are taking detours. Braden had a rough go after his biopsy.  He was very sick yesterday morning and threw up a couple of times and needed a breathing treatment, not to mention the pain.

I asked people for prayers...and this morning he popped out of bed, walked around on his own with no grimacing and we went to the pool...we are now headed out to the arcade.

TAKE THAT cANCER!

Prayers work.

And I know we will get an answer to our prayers for this to be drug toxicity verses a third relapse in just a few hours but...

it may not be the answer we want!

It is strange to pray that it's drug toxicity because it could end up knocking him out of this trial...it's not 100% certain that it would but it is a pretty big possibility and then the thing that has likely been keeping him in remission is no longer a choice.

But that crapfest answer verses a third relapse answer is so much better...so I pray for that one.

cAncer...you stink. You really, really stink...  No one should have to hope for the lesser of the two evils.

I pray it's not a relapse. I plead for it to not be a relapse.

Please God...let him stay!!

I completely believe the reason Braden is still here today is because of the collective positive thoughts and prayers people have sent his way.

Everyone's beliefs are their own and we don't have to all believe in the same thing. I have a deeply rooted faith in God and that is how I center my energy and hope.

I think there's something to a group of people truly believing and hoping for our son no matter what your personal belief system is though. I can't tell you how many times I have literally "felt" that warmth and love from thousands around the world sending their own hope to our son.

I feel it now during these days of waiting and they not only comfort us but they encourage and somehow heal us.

IF we get bad news and it is a third relapse, there will be a "special" set of people who will begin thinking "so where is your God now Deliece? If God was such a wonderful being, wouldn't He/She save your son as you and countless others have asked? You say you are faithful and trusting but those two things really didn't seem to work out for you....your son is facing death yet again."

(People have actually said that to me before)

(...and I have thought it before...)

It's a valid question and concern.

I get it.

BUT...what I learned from Miranda's death, from watching Braden's friends die, from watching my mom die, from watching countless friends die, and being faced with "You need to spend your time well with your son because he's not going to get much more" more times than I can even count is this:

(and I'm going to sound preachy right now)

God is there.

God feels our pain and doesn't want us to hurt. I do NOT believe these things are given from God.

I do believe that there are reasons beyond my understanding that I will NEVER get in this lifetime for why things happen and why people die at certain times that seem so very unfair, wrong, and painful.

Someday, I hope I will get to Heaven and be able to get those answers.  But in the meantime, I know that God is there for me.

We may not get the answers we wanted tomorrow or Tuesday, but I know God is there and that He is answering my prayers even if I didn't get my way.

And I will try my hardest to remember that and not be angry at Him....rather to direct the anger to the one that I believe is responsible for cancer....

I do believe there are two forces in the world.  God wouldn't do this so in my heart and mind it's the other guy.

I will try...I'm still a work in progress and this is my son and when your heart is broken into a million pieces it's very hard to not blame and question.

I am trusting.

I am grateful for the time we have been given.

And I am hopeful that we will be allowed to have about 92 more years with Braden Hofen on this Earth.

100 seems like a pretty good number to shoot for.

PLEASE keep hoping, praying, trusting, and believing.

We CAN do this!!!


Monday, June 17, 2013

Skee ball...

I took the boys on a detour today. 

To Chuck E. Cheese.

It's likely you could hear me groan when I typed that.

Oh how that place drives me nutty. It's not just the incredibly ridiculous noise level...it's the crowds of people, the dirty coins, the smelly pizza, the tables that "were wiped once....long ago", the bathrooms (I won't even describe the mayhem in there), and the germs from every person who touches everything.

Yup..I'm a germaphobe...and a crowd-a-phobe (whatever the real phobe word for that is)...and a neat-a-phobe (like everything in 90 degree-angles-a-phobe). :)  

That place does not meet those criteria...it's the opposite.  And actually the one near our house is pretty clean and we go REALLY early when they open up so the crowd isn't as bad...

BUT it brings my boys so much joy to go there!! They LOVE it. Braden loves playing basketball and skee ball and Zach loves the shooting games.

So I follow along toting the bucket of coins...and then watch as they giggle while they feed their tickets into the machine to get their plastic toy crap that will be broken before we even pull out of the parking lot..true story. Happened more than once. :)

But the memories and the giggles and the happiness...totally worth pushing me outside of my comfort zone.

So...Chuck E Cheese made it on the Summer Detour List for 2013.  

Yes...we have an actual list and yes...we cross things off as we do them.  We have been doing that since Braden's diagnosis and it is SO much fun!! I know my days of having two boys will tolerate running around to various parks, pools, etc. with just mom are numbered so I'm soaking it in.  Zach's on the verge of being too old to be with just his mom and brother...he's going to have to suck it up a little while longer...and he can have friends come with us on occasion! Detours are more fun with friends!

Well today we went to hell...and the boys had a blast. 

I don't think they share my opinion of that place at all! :)

Crossed that puppy off the list! WOO HOO!!!

Braden spent most of his coins playing Skee Ball.  He's pretty dog gone good too!! And everytime he gets the ball into the corner 100,000 point cup, he squeals and screams, "I GOT IT!!!" and jumps up and down.  He almost made the record today!!

Every single shot he takes is aimed at the 100,000 point mark. He doesn't even TRY for the 50,000 or the 40,000...so when he misses it often rolls into the 10K mark.

He doesn't get as many tickets on some of his runs because when he's not "hot" and doesn't hit a 100,000 he gets a far lower score.

But he still tries for the big winning goal every single throw.

Pretty cool.

Obviously, we are all very concerned about Braden's test on Thursday. We've got a 50/50 shot of finding out that his disease has relapsed for a third time. 

If that is the case, any reasonable hope of him ever being "cured" is gone. The docs have been very clear about that.

And we go back into treatment mode...well...search for possible treatment mode...we don't even know if there is anything out there that we can do. 

I can't even wrap my head and heart around him fighting a third time so I'm living for the moment right now.

But Braden is Braden and there's no one in the world like him.  He has no idea anything is in question or could be wrong. Once again, he is just continuing to live.

Everything he does is like how he plays Skee Ball.  

He fights. 

He tries for the big win.

He doesn't even consider trying for anything less.

He is my hero.

And when I grow up, I want to be JUST like him.

As I watched him concentrating and working so hard to get it in the winning spot today, I started thinking that I want to approach life the way that Braden Hofen plays Skee Ball.

Throw for the 100,000 mark every single day, in everything I do, every single throw.

Why settle for less than 100% of your best effort each day? 

Each day is a gift...we should be thankful we got it and we should use it to try to make a positive difference in the world.

So thank you Chuck E Cheese.

And thank you Skee Ball.

Mostly, thank you Braden Hofen. Once again, you have clarified life for me.

I love you with all of my heart buddy.  

Mommy will ALWAYS try to be like you!!

You give me hope!

Friday, June 14, 2013

Prayers needed...

I don't typically post my CaringBridge posts on this site...but this one is an exception because our need is great. 


We need your thoughts and prayers for Braden.

Braden has not made counts for ABT-751 (his chemo) for 35 days. That is pretty unheard of for him. He's missed a week here or there but never for this long. It's only his platelets...everything else is ok.

The problem is this...suppression of platelets can mean disease in the bone marrow.

I've been breathing...his HVA/VMA have been low (but they can remain low in a relapse and not be elevated to indicate new disease).  And he's feeling good and happy...none of his usual "I have cancer" signs.

Until today. He missed counts again yesterday. I emailed Philly and asked what the plan was...would we do a bone marrow biopsy.

Dr. Mosse said that a few patients on ABT-751 developed a toxicity for the drug and that is evidenced in a drop in platelets. They give the patients 42 days to recover in counts before scheduling a bone marrow biopsy to check for a relapse of disease.

Next Thursday we are at day 42.

The plan is that we go in for counts and if platelets are at 75,000 (they were at 64K yesterday and have been uncooperative in moving for weeks), we will go home. IF platelets are NOT at 75K, we do a bone marrow biopsy that day.

It just got real again.

TOO real.

DAMN cANCER!!!  

SO...we need positive thoughts and prayers once again...lots of them. Every individual, every group, every single person you can think of...we need you.

We need the mountain to move.  

I pray and I cry to God to please allow Braden to stay....and at the same time I thank him for the time we have gotten. We should not have had these past 2.5 years...he medically should not be here.

We were given a gift and we have made the most of it. I feel extremely blessed and very selfish in wanting more time.  

I used to pray that he would get to have firsts...and he has had many. SO many of our friends have not been this blessed so I feel a little (okay a lot) greedy in hoping for more.

BUT...I DO...I HOPE and PRAY for more firsts!!

AND...I'm incredibly grateful for what we have been given.

We need you..I believe there is power in the army's positive thoughts and prayers...and I am calling on you to help us move that mountain.  

I will update next week on Thursday after counts come in and let you know what the next step is..hopefully it will be that we are on our way home and there is no need for a bone marrow aspirate.

And I feel the need to say this...I do NOT believe this scare and any potential relapse is the work of God. PLEASE do not blame Him.  I believe there are two forces in the world and this is definitely the work of the other guy.  The God I serve is loving, caring, and compassionate not this. He does not make us worry, fill us with fear, and sadness...that's not his M.O. in my mind and heart.  He will see us through this...no matter what the news is on Thursday.

HOPE...PRAY...BELIEVE!!

The mountain MUST move!!!  No other option is acceptable...I believe in miracles because I live with one...and I believe the mountain can move!

And...please keep our friends the Bennetts and Grindels in your thoughts and prayers as well. Paul Bennett died on Monday due to a heart attack. He was quite possible the most amazing man I have EVER met. His generosity, love of his family, positivity, generosity, and capacity to do good in the world are unmatched. 

With HOPE, love and thanks!
Deliece :)

Friday, June 7, 2013

The Short Bus...


Yes, if Braden rode a school bus, it would technically be what some people call “the short bus”.

I stopped being upset by that term years ago, but I still don’t like it. It doesn’t build people up…it does just the opposite.  

It’s just like the word “retarded”…I don’t get why people use that to be derogatory when it is so hurtful to people with children with low cognition.  

Not cool.

Braden had his “three year re-evaluation” and annual IEP a few days ago.  That’s always a big meeting because every three years, they have to “prove” that he still needs special education services and then target his new needs from the growth (or lack thereof) he has had in three years.

The report was sad because it pointed out so many things Braden Hofen is not good at, but it also is happy because it shows how far he has grown.

As a teacher and then Principal, I used to get frustrated when parents would act like the severe deficits we were showing them were no big deal and just more news. It felt like they were choosing to not accept the fact that their kids had those big deficits as they focused on “all the growth they have made”.

Well…

I get it now.

Hearing those deficits didn’t crush me;  I merely ignored them. I did read the report.

Most of it.

Sometime I got tired of hearing how bad things were and how poorly he scored, so I skipped those pieces after the first couple of sentences.

I get it…

He’s very delayed.

Extremely delayed.

And it’s their job to provide those data to show where he is currently functioning. Our team is FANTASTIC and I admire and value each and every one of them. They don’t mean any harm or to be negative or mean at all, just as I didn’t when I was in their shoes.

BUT…the Braden Hofen I know can do so much more than those tests showed. It’s just that we measure ability and strengths in one way…standardized tests and informal tests…common element of “tests”.

When he was three years old, when he was trying to say “mama” he would say, “ma…. And I would literally slowly count to 10…then came the second syllable….ma”  Now he talks non-stop at an appropriate pace!! AMAZING!!

He’s very delayed from his peers, I am not ignoring that and I’m not kidding myself but from when he started to where he is now…holy smokes!!  Just AMAZING!! 

I choose to focus on that!

I choose to focus on the gifts he brings….and I do get the deficits…but I want to make sure everyone else gets the amazing growth. Those deficits really ARE no big deal!

I “GET” it parents of mine from all the years I was in the Principal/Teacher seat. 

And I’m sorry I didn’t “get it” then!!

So much of what Braden knows is in his brain…it really is in there but his brain has a hard time outputting that information on a test.

And every time a parent used to tell me that I thought to myself, “You are in denial.  I appreciate that you believe in your child but we don’t see the same levels of functioning here that you are describing. Please listen to us when we tell you how far we have to go.”

So as I approached this meeting, I prepared for it.  I assumed they would roll their eyes, smile, pat me on the back and send me on my merry way. Which is kind of what happened.

Complete role reversal. 

Total 180 for me. And I had to laugh at the irony.

I had specific examples…so when they said that they were going to work on word problems with addition and subtraction and what a stretch that would be for him and how hard it was because of his delays and things that are not strengths…

I pulled out the book we had read the night before. One of the pages had three bowling pins lined up and one had fallen over.

Braden stopped me from turning the page and said “MOM!! Look!  There are three bowling pins, one fell over so take it away. How many are left?  Use your touch math!” 

Shock and awe…all around the room, well except for the three that knew him the best who just smiled and shook their heads in agreement.

Much of it is in there. 

I’m a realist, not everything is “in there”…but a lot more of it is there than we think.

The trick with autism is finding the way to unlock it to let it out so WE can see it.

Three years ago at his last re-eval meeting, I didn’t care what his goals were or what they wanted to do because I didn’t think he was going to live to see first grade. The words on that page didn’t matter.

I still don’t know that he’s going to be here for his next annual IEP or three year re-eval BUT…since he IS here and is in remission right now…we are hoping for it.

And we are continuing to search for ways to unlock all of that stuff and get it out.

He’s a bright boy. And we have a team that believes that he IS bright and capable and they won’t give up on him.

A mom can’t ask for more.

So no short bus for my B-Man….

I think he should have a stretch limo…

because to his momma,

he’s kind of a big deal!

TAKE THAT cANCER!

Thursday, May 30, 2013

TAKE THAT cANCER...

That's the title of my new book...yup...a BOOK!! Unbelievable!

TAKE THAT cANCER...A Mother and Son's Journey to HOPE

Mrs. Schmeller, my high school English teacher is laughing right now. I could never get an "A" on any work I did for her...I'm pretty sure this book wouldn't be an A but it comes from my heart. :)

It's the story of our dual cancer fight, about how you have to fight with your gloves off, and about hope and faith in a God who loves us more than anything.

It's 5 years wrapped up into 110 pages. That was no easy feat...

As you can see...I like to type...words flow...too many words :)

So I had a co-author, her name is Maureen Rank and she was a gem. She helped me get things into a structure so I could feel what I really wanted to share and what really was important. I have thousands of pages of writing over the past five years and every page was important to me.

I'm not good at "thinning" :)

Once she had the format worked out, I could then write and literally feel what I wanted to say. I had no plan...I just wrote from my heart.

Hopefully, the book will give you courage and uplift you. It will probably make you shed a tear or two and I hope you fall over laughing at times too!

I expected to have a book when I was done, but I did not expect for the process to change me and help me grow. It did.

In so many ways, I feel like I have been able to wrap that package up and put it closer to a shelf. I'm not sure it will ever make the shelf...I don't think cancer fights work that way...but it is in a package, with a big bow!

Five years of battling, crying, laughing, detouring, living....

What a blessing to be able to write this book and have a story that is continuing for now!!

BLESSED!!

If you are interested in seeing the book and reading the back cover description please visit www.BradensHope.org and click merchandise. The book is $11.99 and we will ship it out to you right away for $2.00 extra per book.

If you live in Kansas City, you can pick a copy up at Outside The Box Gifts in the Rosanna Shopping Square in Overland Park 11616 Metcalf Avenue (right beside Mardel). You don't have to pay S&H that way AND we will have them for you at the HOPE Walk on June 8 at Frontier Park in Olathe. :)

They are on Amazon but if you purchase them from our website, we get to keep about twice the profit as apparently Amazon likes to have a big old share! :)

I hope you enjoy the book should you purchase one.

It feels so empowering to be able to write this story and put the past 5 years in that box...with the big bow...

TAKE THAT cANCER!! :)




Sunday, May 26, 2013

Flower Gardens...

Memorial day has always been a weekend that my family meets up and goes out to decorate gravesites.

There have been several years that we haven't joined them because Miranda is buried in Iowa while my mom and other lineage are buried in Holton, Kansas and the surrounding area.

From the time I was little, Memorial Day has been a big deal in our family. We would travel to Holton, Kansas to spend the weekend on the farm with my grandparents. My grandparents lived in a very old farmhouse. They had running water but they also had a cistern well on the porch that we used for water needs that didn't involve cooking. I LOVED cranking that cistern well!! It was SO much fun to watch the wheel and cups go around and come back up with water to dump into the spigot.

We drank our water out of cleaned "Archie and the Jugheads" jelly jars that had turned into glasswear, we had bread and butter on the table at all times that we ate with every meal, lava soap near the sink to wash with, chicken and dumplings that Aunt Kate made every year, Grandma's apple pie (and I got to eat the extra crust pieces she baked with cinnamon and sugar on them JUST for me), and I got to be a total tomboy all weekend in the out buildings and pastures and ponds.

At night, we slept in beds that we had to "air out" to make sure there were no mice in them...and we used chamber pots in the middle of the night. Really!!  We even had bowls and pitchers upstairs for sinks to wash our hands and faces in.  The cellar was filled with canned fruits and vegetables they had grown. They had one black and white tv with rabbit ears that got one channel in very fuzzy after it took about 5 minutes to "warm up" although I don't really remember watching tv there because we were way to busy playing outside.

I have great memories of being at my grandparents' for the weekend!! As we grew older, and so did our parents, we often got to stay in town at a hotel to avoid those mice in the bed, but it was never the same. It was also air conditioned and that wasn't all bad either! :)  PLUS..the lobby of the hotel had a COLOR Television that had Charlie's Angels on it..and Fantasy Island. We couldn't get those shows on our television in the country at our house so it was a HUGE treat!

Well, this year, we had just been to Miranda's grave in Iowa so we elected to go to Holton. We began our tour de cemetery with the Holton Cemetery were my mom and many other relatives are buried. The cemetery is always beautiful on Memorial Day weekend. The flags are just stunning as you drive down the aisles lined with them.

As we drove into the cemetery, Braden said, "Oh...the flower garden!!" I loved that!! Yes...it IS a flower garden this time of year and it's such a happier way to look at a cemetery!! Smart boy!!

We stopped first at mom's gravesite and the boys put flowers on her grave. We always tell her thanks for watching out for Braden and taking care of Miranda. I admit, visiting gravesites with Braden is a little strange because every time I wonder if next year we will be visiting his grave.  It's a very sobering, eerie feeling.





Decorating graves was very important to my mom and she instilled in us an importance of making certain that we continued this tradition long after she was gone. We have done so. I know mom is smiling about that. I'm much to afraid to not do what she asked! LOL!!

We stopped at the graves of some of our relatives that I never knew. The latest they died was in the 50's...and I'm not quite that old. ;)  One of the graves is that of Leah Johnson. Now I know they have told me about 100 times how she is related to us, but I can't remember.

Anyway, her nickname was "Bone Crusher" and I hear she was a spunky one! I think I would have liked her and it's highly possible I got some of her DNA. Okay...a lot of her DNA. My brothers said that she used to have a big electric vacuum broom and she would give kids rides on it. She was a spinster as far as they can remember and she sounds pretty awesome to me! :)

Leah once told my mom to never, ever put artificial flowers on her grave. Ever! :)  My mom used to put them on her grave every year just to be ornery. Well...every year mom would cut her finger on the flowers somehow. She would always say, "Now don't poke me this year" before she put them in the ground and it never failed...she always drew back with blood on her hand. The boys told me the last two years she decorated her grave, she didn't get pricked. They thought Leah was giving her a break! :)

All I had was artificial flowers.

There was NO WAY I was going to put them on her grave. Not me.  BUT...the boys did it. I looked up at the sky and chuckled and said, "Okay Miss Leah...just remember that I was NOT the one who did it!" :)  And then I moved back a few steps from the boys incase lightning struck; they were on their own.

We then went to the Circleville Cemetery which is where my dad's side of the family is buried. I do enjoy looking at the graves that are really old to try to figure out the history. There are so many infants and children buried in those old graves. Well..beside one of the graves of a relative was one of those graves. Charlie who died when he was 2 years old in the 1880's. I asked if anyone knew who he was and they thought he was related somehow but couldn't place him exactly.

So Braden and I went back to the truck and got flowers and we decorated Charlie's grave. We have several older graves of little ones we decorate that are near our family plots even though we don't know exactly who they are. We sort of adopted them. No one else in my family puts flowers on their graves, I suppose because they didn't know them in person but they are family and they are kids and they need flowers. Period. (and yes...they look at me like I'm strange for doing that....whatever silly people!!)

Then we went to Olive Hill...it's a VERY small cemetery in the middle of no where but near our family farm.

Olive Hill holds the grave of my great Aunt Kate and her family.  Aunt Kate didn't like artificial flowers either so each year my brother and sister in law pick flowers out of her flower garden at the farm and take them to her. I still remember picking daisies, iris, roses, and smoke from her smoke tree to make bouquets every year at memorial day. She and my Grandma would carefully cover tin cans in foil and we would take a bucket of water with us to pour in the cans with the flowers after we carefully carved out a small round indention to fit the cans in beside the graves.  We also spent quite a bit of time picking gooseberries and wild strawberries for pies later in the summer!! It was a lot of work but sooo worth it! :)

Aunt Kate's sister, Ella, who died in the late 1800's and was only 5 is buried next to her so we put our pink flowers on her grave. And then we went to visit my favorite grave of all time.  This grave is of someone I don't know and she's not a relative but I go visit her every year we are there and giggle with her. I wish I could figure out how to turn it so you don't have to cock your head...but it's worth it, trust me! :)



It seriously cracks me up.  Maybe she was bitter or maybe she was just getting even...don't know but I still giggle!! You GO Marva. Chester...wonder what YOU did!! :)  LOL!!

After we finished, we went back to my dad's house and visited for a bit. Dad was having a great day and we had a really good talk.  Dad has alzheimers but was clear as a bell. He was able to tell stories about family members and knew what specific flowers we needed to put on each grave. This is a picture of my dad and the boys! :)



We headed home but stopped in Topeka to eat at Red Robin and got a Salted Carmel Shake to split between all of us. It was AWESOME!! :)


Memorial Day is about honoring those that died for our country, remembering those we love that have earned their angel wings, and detouring.  We accomplished all three!!

Oh...and visiting the flower gardens.

:)